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Data Storage Medicine Privacy IT

Google Health Open Platform Is Great — Or Awful 179

JackPowers writes "The Google Health APIs enable portable, standardized, open architecture, extensible personal health records, which is nice but boring if they're just used to manage the paperwork of the doctor/patient relationship. But once the data is set free, all kinds of Web 1.0, Web 2.0 and Web 3.0 apps are possible. This article looks ahead 10 years at Best Case Scenarios. A follow-up article lists the Worst Case Scenarios."
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Google Health Open Platform Is Great — Or Awful

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  • by BadAnalogyGuy ( 945258 ) <BadAnalogyGuy@gmail.com> on Friday June 06, 2008 @11:29AM (#23682627)
    No private company should be so entrenched in society that it would be impossible to survive without the service they provide. If I can't get a job without a Google Health "badge", then something somewhere has gone horribly wrong.

    This is already a big problem with credit companies becoming so pervasive. It's also bad enough that private companies are leading the American military around by the nose. But that pales in comparison to the actual, direct, and personal limits imposed by something like the system the article is talking about.
  • The ideas are cool (Score:5, Insightful)

    by Oxy the moron ( 770724 ) on Friday June 06, 2008 @11:38AM (#23682719)

    But that doesn't mean they're good. Diet monitoring? Try this [freshmeat.net], or any other free web service that does it *without* needing your medical history. Fitness Monitoring? Doesn't Wii Fit do this? How about a simple spreadsheet? Travel? Is it that hard to look at The Weather Channel [weather.com] before you leave?

    Honestly, this just sounds like candy-coating a terrible idea so that people will buy into it. None of the ideas on that page are lacking a non-Google implementation assuming you're not too lazy to do some footwork.

    Then again, if you are too lazy, maybe whatever ill effects you receive from using Google's service are deserved...

  • by JCSoRocks ( 1142053 ) on Friday June 06, 2008 @11:42AM (#23682763)
    That's the very point the OP was making. The credit companies are already ridiculous. Not, "yay credit companies! it's totally ok that they can ruin your life!"
  • by ColdWetDog ( 752185 ) * on Friday June 06, 2008 @11:42AM (#23682767) Homepage

    This is one of the most (potentially abused) systems I can forsee. I really don't think losing our privacy where medical records are concerned is going to help society. this just stinks. google should be ashamed.

    Unless this is mandated by somebody or other, you're free to post or not post whatever you want on Google health.

    That's fine, but it does severely limit the usefulness of the product. As a physician, I'm not going to be inclined to spend much time looking at a highly edited version of somebody's medical history. There is a reason we ask for records from doctors or hospitals. It's far too easy to simply edit out the uncomfortable bits of your life. That of course, is perfectly within your rights, but my job is too look at the whole history, not bits and pieces.

    I don't see this as taking off much in the professional sector - it may be popular in the direct-to-consumer advertising space (which is why I cynically suspect it exists), but it's too limited to be much use professionally. Not useless, but very limited.

    The truly scary part is that the "10 worst" scenarios are much more likely to come true that the "10 best".

  • by Anonymous Coward on Friday June 06, 2008 @12:04PM (#23683113)
    The thing about health is -- it's not always your damn fault if you fall ill. You'll understand when you get cancer, even if you had had a "healthy lifestyle" beforehand. You just can't control everything that has an impact on your health.
  • by NewbieProgrammerMan ( 558327 ) on Friday June 06, 2008 @12:06PM (#23683131)

    I welcome the idea that those with healthy lifestyles shouldn't be subsidizing those with unhealthy lifestyles. Plus, there is then an obvious economic incentive to become healthier.
    Maybe I'm just naive, but it seems to me that the *only* way to prevent healthy people from having to subsidize unhealthy people is to (1) allow health care providers to refuse to treat unhealthy people, AND (2) make everybody pay for their own health care. Anything less than that will involve some hidden subsidization via taxes, etc. (Please note I'm not saying I think it should work that way, just that subsidization is always going to be part of health care).

    Also, sometimes bad health has nothing to do with having an unhealthy lifestyle. It seems to me that "giving an obvious economic incentive to become healthier" will also have the unintended consequence of economically punishing people who got an unlucky roll of the genetic dice.
  • by Hijacked Public ( 999535 ) on Friday June 06, 2008 @12:10PM (#23683183)

    I welcome the idea that those with healthy lifestyles shouldn't be subsidizing those with unhealthy lifestyles
    You should drop your health insurance then. Or at least get into an HDHP.

    Or go to work for a drug company, or a healthcare provider. They see an economic incentive in keeping people in poor health.
  • by WamBam ( 1275048 ) on Friday June 06, 2008 @12:13PM (#23683245)
    As someone who deals with paper medical records all day, I welcome standardized electronic medical records. Not only would e-records be portable, they would also allow for greater continuity of care between healthcare providers. Obviously, security is an issue and I'd like to see more measures taken to ensure that our medical records are protected. As for the possibility of these records raising insurance premiums I think the best way around this is to create a national healthcare plan. I would think that in countries where there is national healthcare services, electronic medical records would be of great benefit since it's inevitable that such a large beaucratic undertaking would need centralized patient information. I would take issue with basing rates on people with healthier lifestyles. There are many in this country that aren't living healther lifestyles due to socio-economic factors. People that live in in poorer areas don't always have access to proper healthcare, are often not educated in the ways of maintaining health and don't have access to nutritional foods.
  • by grassy_knoll ( 412409 ) on Friday June 06, 2008 @12:14PM (#23683251) Homepage
    What's next? Only approved food may be sold? Perhaps any non-vegan food is subject to confiscation and the owners subject to arrest?

    Maybe we can ban alcohol nationally, since that worked so well last time.

    Oh, I know. Mandatory exercise. Not running fast enough? Well, attack dogs are cheaper that what you're costing medicare, so enough with your rights.

    The idea the economics of health care must trump individual rights leads to complete regulation and control of everyone's lives as a "cost saving measure". It's totalitarianism.

    But I suspect you know that, since your sig line seems to indicate you're trolling.. if so, well done.
  • by Quadraginta ( 902985 ) on Friday June 06, 2008 @12:14PM (#23683253)
    You think? Hmmm. How about someone in government realizes that AIDS costs the public treasury a huge amount of money, so they start penalizing a gay lifestyle? Or being unmarried, which shortens up your life? Or amusing yourself rock-climbing or bicycle racing, which are more dangerous than going to the gym and riding a stationary bicycle to nowhere?

    More plausibly, how about someone in government thinks that lifestyle X is bad for you, and starts handing out tax penalties and rebates accordingly -- but he's wrong. Not like we've ever had any health fads that turned out to be nonsense, right? And no government bureaucrat would dream of making decisions when he doesn't really have enough information to make a good one, right?
  • by timeOday ( 582209 ) on Friday June 06, 2008 @12:19PM (#23683329)
    The UK is working on a massive centralized database of health records called NPfIT [ieee.org]. Aside from all the typical delays and cost overruns [ieee.org] of deploying a massive new IT system, there is widespread concern [4ni.co.uk] about privacy among citizens. It will be very interesting (and easy) for Americans to sit back and watch how it pans out. I have an in-law who was fired from a nice hospital job for unauthorized access of patient records (she was showing a friend hoping to get hired on how they file things), which showed me both that 1) privacy concerns are real, and 2) institutions take the matter seriously, at least in some cases.
  • by GeckoX ( 259575 ) on Friday June 06, 2008 @12:24PM (#23683415)
    Nothing like being guilty until proven innocent is there?

    A criminal background check, ok, not a big deal for the most part and can save a company a lot of potential headaches and/or liability.

    A credit check though? What good does that do for a company? Actually, wouldn't most companies prefer employees with less than good credit ratings as they would likely be less able to leave the job?

    Piss test too you say. And why can't this be left to law enforcement? Pretty serious invasion of privacy, and if there's not a damned good reason for it how can it possibly be justified?

    Actually, companies doing these things could be opening themselves up for lawsuits. A lot of places have laws in place to disallow discriminatory hiring practices, which these in most cases would be. There would have to be a darned good reason for discriminating based on credit rating for the job to use that as a reason not to hire someone.

    Anyways, there are probably more reasons than just this as to why you _don't_ own your own company. But should you ever make the leap, could you just post a notice on /. so we all know _not_ to bother applying? Mmkay, thanks.
  • by Quadraginta ( 902985 ) on Friday June 06, 2008 @12:24PM (#23683425)
    You're thinking that it takes a physician the same time to read through your history and pluck out the important stuff that it would take you, a complete amateur with nearly zero understanding of how medicine works.

    That's as logical as thinking that it would take Linus Torvalds as long to understand a kernel patch as J. Random User who's never coded a line in his life. Or that your car mechanic needs to carefully listen to every sound your jalopy makes to know whether it needs a valve job. Or that the conductor of the Los Angeles Philharmonic would have to get out a tuning fork and go carefully around to listen to each of his 150 musicians to know whether the orchestra is playing in tune.
  • by InvisblePinkUnicorn ( 1126837 ) on Friday June 06, 2008 @12:31PM (#23683535)
    "Seems like a win-win to me."

    As long as you are on the enforcement end, and not on the end being forced to give up all of your rights as a rational being, everything will always look win-win.
  • by ColdWetDog ( 752185 ) * on Friday June 06, 2008 @12:31PM (#23683539) Homepage

    If you are indeed a physician, where are you? I ask because here in the US there is absolutely no wau any physician I've ever met would take the time to read my entire medical history, because there is no way an insurance company would pay them to do it.

    I'm in Alaska, come up and visit. Bring your harpoon....

    "Taking the time to read your entire medical history" may or may not be particularly relevant. If you are young and healthy without significant ongoing issues, it may be perfectly unnecessary. I likely don't care about the details of your tonsilectomy at age 6 (I might, however, if you had a significant anesthetic reaction).

    But you bring up a good point that's generally obfuscated in these debates: You may not want every detail of a person's medical history at any given time. Sometimes you do. Having to wade through tons of extraneous detail makes it easy to miss important tidbits. Getting a 200 page printout from a 6 day hospitalization with everything including the janitor's notes doesn't help me much. Putting that in machine readable format helps me maybe a bit. What we don't have is an underlying, consistent framework for electronic medical records that's used by everyone and has the capability to organize a huge amount of information into a generally usable format.

    There are baby steps out there, but it's a huge chicken and egg problem for the field. I personally see the digitalization of medical records happening *very* slowly - over the next 20 years or so. And that's a feature, not a bug folks. There are absolutely huge societal issues to be dealt with before we give some uber-governmental department the holy grail of databases. I'd rather have the current fragmented system then allow every government and corporate entity start data mining for whatever purpose of the week they feel important (or profitable).

  • by D Ninja ( 825055 ) on Friday June 06, 2008 @12:33PM (#23683567)
    From the "Good Things" article...

    Ready to take their relationship to the next level, lovers Romeo and Juliet share STD status reports through their Google Health accounts. If things get serious, they'll open up their entire files to each other and compare genetic data when contemplating children.
    This doesn't seem like such a great thing to me. Here's the scenario I see...

    Romeo and Juliet share STD data. They are both clean (or so the record says). Great. They can now enjoy sex with each other.

    Then, over time, they decide that this relationship is really a great thing and they want to start looking into marriage. They get married. Everybody is happy.

    Now that they're married (because nobody would be stupid enough to share this type of data BEFORE marriage...would they?), they share their genetic information with each other as they are talking about children. But, what's this?! Juliet sees that Romeo has a high propensity for Down Syndrome (or any other "disease" - take your pick). Well, this isn't good.

    So, instead, Juliet decides to get a divorce and go on her merry way.

    The End
  • by value_added ( 719364 ) on Friday June 06, 2008 @12:47PM (#23683751)
    No private company should be so entrenched in society that it would be impossible to survive without the service they provide.

    An insightful comment if ever I read one, but I'm afraid you're a few generations late. As a society we gave up believing in government, institutions of power or authority, religeon, civic responsibility and most all notions of tradition, and adopted instead a belief in individuality and self-fullfilment. That doesn't leave us with much, does it?

    If the current trend continues and free market idealogues get to rule the day, we should expect to have everything from infrastructure to institutions ruled and run entirely by corporations (to the extent they don't already), and we'll all be working for Taco Bell or for The Brawndo Corporation.

    The situation can also be viewed political terms. A good portion of the electorate really does believe that government is evil, that government can't possibly do anything as efficiently or as cheaply as business, and that taxes infringe on their God given rights, but they're only too happy to let the Walmarts of the world take over provided they can maintain the illusion they've kept a few extra dollars in their own pockets.

    The people who complain about undue corporate influence on government probably don't notice that they've succumbed to those same influences in their own lives, but they might notice when there's nothing left to sell off, somebody else holds all the cards and those free-market choices they've been promised come up short.

    Google, I think, is doing what any business does, and that's fulfulling an unmet need and making or trying to make a profit in doing so. The question is why we're not doing it ourselves?
  • Re:Oh Hell (Score:3, Insightful)

    by Bogtha ( 906264 ) on Friday June 06, 2008 @12:59PM (#23683897)

    Don't forget that it has to use the Wisdom of Clowns.

  • by Anonymous Coward on Friday June 06, 2008 @01:06PM (#23683995)
    Is it just me, or do teh best and worst cases seem almost identical?

    Take the sex examples:

    Best Possible Thing - Romeo and Juliet share STD information after getting to know each other, before having sex.

    Worst Possible Thing - Lonesone Larry freely decides to share his STD information with prospective dates.

    There isn't that much difference. And while we might think Larry's decision is stupid, he might have a good reason for it.

    The same goes for some of the other issues.
  • by db32 ( 862117 ) on Friday June 06, 2008 @01:28PM (#23684295) Journal
    You have some false logic in your security description. When you talk about how it would be easier to steal data from the office server rather than from Google you are grossly misunderstanding the threat. What are the odds that someone is going to even target that private practice? How much do you think they would even get if they do get in? I would even go so far as to say that the average individual worthy of specific targeting typically gets healthcare from slightly larger and more advanced organizations. Now on the other hand, you have one of these online providers that will host more individual records by many orders of magnitude. So the payoff for a success is already considerably higher. Couple that with being targeted by a number of threats many orders of magnitude greater than that small provider.

    Now on top of that...I think these services are monumentally stupid because of some of the very reasons you mention. That many people with all their medical data all in one place. That is a datamining heaven. Corporations will want that "Sorry, you have too much of a medical history, we don't want to hire you because you will cost us too much". Insurance companies will want that "Oh, you have a family history of 4 major expense problems...your premium will be tripled for this and will be subject to early termination." Of course there is the tremendous amount of political value "Prolifer Sally is on her 3rd abortion." Then the really really really fun one everyones favorite reoccuring government program! Eugenics! What better way to track down all of the undesirables that you would like to exterminate. To hell with getting IBM to help you with a census like the Nazi's, we have DNA testing these days!

    All of this with no real protection to stop any of these companies from selling out to the highest bidder. Or has it has been lately with the Bush Administration and the telcos search engines...just rolling over for whatever nonsense the government asks for in its quest for the "War on (Drugs|Terror|Poverty|Other)".
  • Re:web 3.0? (Score:3, Insightful)

    by sm62704 ( 957197 ) on Friday June 06, 2008 @01:57PM (#23684745) Journal
    The same as web 2.0, which is the same as web 1.0 was. It's yuppie buzztalk for the clueless by people who miss the dotcom bubble.

    Web 1.0 was "It's a series of tubes."

    Web 2.0 is "It's a cloud."

    Web 3.0 will be "It's pixie dust and fairie magic".

I have hardly ever known a mathematician who was capable of reasoning. -- Plato

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